Being a police officer comes with a responsibility to keep people safe and secure. How heartbreaking will it be for parents, deployed in police service, who are responsible for the safety of their fellow citizens but are unable to protect their own loved one.
One such story is of Mumbai-based police parents who are struggling to provide a better lifestyle to their baby boy and keep him safe. Balip family’s only child, Aarush, aged 4, is suffering from a rare genetic disorder i.e. of Spinal Muscular Atrophy (SMA) Type 3. Currently, Aarush’s parents are raising funds of INR 5 Crores on the crowdfunding platform ImpactGuru.com for his treatment.
Aarush’s parents considered him as a special child due to the disabilities observed over the years. However, they were left heartbroken a few months back when Aarush was diagnosed with SMA Type 3. All they could do was recall the times when Aarush was unable to walk or would fall frequently while taking baby steps and their support that kept him moving all these years. Aarush at a very young age of 4 years visits hospitals and physiotherapy sessions much more than he visits the playground.
“I have sworn my life for this country. But today, I need our nation’s help to save my only child. Seeing him like this kills me. This disease is eating away at his childhood and his life. Today, he looks wishfully at the other kids as they run, play & walk. Small things that he struggles to do. I want to do everything to give him a normal life” said Nitin Balip, Aarush’s Father.
Spinal Muscular Atrophy - Type 3 or SMA-3 is a genetic neuromuscular disorder that affects the nerve cells which control voluntary muscles (motor neurons). Without treatment, the progressive muscles develop muscle weakness and hypotonia resulting from the degeneration and loss of the lower motor neurons in the spinal cord and the brain stem nuclei. The only treatment suggested by the doctors at P. D. Hinduja Hospital & Medical Research Center, Mumbai, is multiple vials of medicine - Risdiplam over the next five years which is heavily priced at a sum of INR 5 crores.
“These are his days to go to school and play with friends. Instead, he is forced to undergo physiotherapy. It is supposed to stop his muscles from tightening but it only brings pain to every inch of his skin. However, these are just safety measures to delay the grave symptoms of SMA. If it’s not treated on time, Aarush may soon need a wheelchair. He also stands at the risk of losing his life even before his childhood is complete. I request every donor to donate at least a minimal amount as it will help take us a small step towards raising INR 5 crores with the help of ImpactGuru and saving my son from this deadly disease” appeals, Aarush’s Mother.
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